Unlocking the Best Care for Your Child with Cerebral Palsy – Questions Every Parent Should Ask
Cerebral palsy (CP) presents unique challenges, and as a parent, you want the very best for your child. The right medical, therapeutic, and support systems can dramatically improve their quality of life—but how do you ensure your child gets access to the best care?
The key lies in asking the right questions. By knowing what to ask at medical appointments, therapy sessions, and school meetings, you can unlock treatments, therapies, and resources that will maximise your child’s potential.
In this blog, we’ll explore the latest advancements in managing CP and, most importantly, equip you with essential questions to ask doctors, therapists, and educators to get the best care for your child.
1. Managing Motor Impairments: How Can I Improve My Child’s Mobility?
Cerebral palsy affects movement, muscle tone, and coordination. Individualized interventions can make a significant difference.
What to Ask Your Child’s Doctor or Therapist:
- “What therapies are most effective for my child’s specific type of CP?”
- “Are there any cutting-edge treatments, like robotic-assisted therapy or virtual reality rehab, that could benefit my child?”
- “What role does aquatic or hippotherapy play in improving my child’s mobility?”
What to Ask About Medical & Surgical Options:
- “Would Botox injections or muscle relaxants help with spasticity? What are the risks and benefits?”
- “Is my child a candidate for Selective Dorsal Rhizotomy (SDR) surgery? If not, what other surgical options should we explore?”
- “Can you refer us to an orthopaedic specialist to assess my child’s posture and joint health?”
Top Tip: Many treatments require advocacy – don’t be afraid to push for a second opinion or to ask for referrals to specialists.
2. Addressing Co-Existing Conditions: How Can I Ensure My Child’s Whole Health Is Cared For?
Many children with CP also experience epilepsy, learning difficulties, or mental health challenges. A holistic approach ensures all aspects of your child’s health are considered.
What to Ask About Epilepsy & Seizure Management:
- “Does my child need an EEG to check for hidden seizure activity?”
- “Are there any new anti-seizure medications or alternative treatments we should explore?”
- “If medication doesn’t work, what surgical or neuromodulation options exist?”
What to Ask About Intellectual & Learning Disabilities:
- “How can I get an Individualised Education Plan (IEP) for my child?”
- “What assistive technology can help my child with communication and learning?”
- “How do I ensure my child receives the best educational support in school?”
What to Ask About Emotional & Mental Health:
- “How do I know if my child is struggling emotionally due to CP?”
- “Can we be referred to a mental health professional who understands disability-related challenges?”
- “What resources exist to support parents and siblings of children with CP?”
Top Tip: Schools and healthcare providers don’t always offer support unless asked – so be proactive in requesting assessments, therapies, and accommodations.
3. Ensuring the Best Quality of Life: How Can My Child Live Independently & Happily?
A fulfilling life goes beyond medical treatment—it’s about inclusion, independence, and happiness.
What to Ask About Accessibility & Inclusion:
- “What community programs or sports are available for children with CP?”
- “What modifications can be made to our home or vehicle to improve accessibility?”
- “Are there government programs that offer financial assistance for equipment or caregiving support?”
What to Ask About Assistive Technology:
- “Would a communication device or speech-generating app help my child express themselves?”
- “What mobility aids (walkers, wheelchairs, orthotics) would improve my child’s independence?”
- “How do we get funding or insurance coverage for these devices?”
What to Ask About Caregiver & Family Support:
- “What respite care options are available to give me and my family a break?”
- “Are there local or online support groups for parents of children with CP?”
- “How can I advocate for my child’s rights and future independence?”
Top Tip: Organisations like Cerebral Palsy UK; Scope ; Action Cerebral Palsy; Brain Injury is Big; and government agencies offer advice, financial aid, support groups, and advocacy resources – so reach out and connect!
4. How Can an Experienced Legal Team Help?
If your child’s CP resulted from medical negligence, you may be entitled to compensation to cover lifelong care, therapy, and assistive technology. Seeking legal advice can help secure your child’s future.
What to Ask a Cerebral Palsy Solicitor:
- “How do I know if my child’s CP was caused by medical negligence?”
- “What compensation can be claimed, and how will it help my child long-term?”
- “What is the process for making a claim, and how long does it take?”
- “Will I have to pay legal fees upfront?”
Why Choose Our Specialist Legal Team?
Our expert cerebral palsy solicitors have a proven track record of securing life-changing compensation for families affected by cerebral palsy. We understand that legal claims can feel overwhelming, but we are here to guide you with compassion and professionalism. For legal advice contact us today on 0330 822 3451 or request a callback – we’ll provide expert advice with no obligation.
Final Thoughts: Your Questions Unlock the Best Care for Your Child
The best way to secure the right treatments, support, and future for your child is to ask the right questions—and to keep pushing until you get the answers you need.
By advocating for your child, seeking expert advice, and working with experienced professionals, you can ensure they receive the best possible care and opportunities for a fulfilling life.